Hi Phil,I have just read your artical in the paper this morning and can relate to you in some ways, I used to dance 2 or 3 nights and go to dance lessons and was very fit looking forward to the rest of my life,I had my own fashion store in burleigh Heads when all of a sudden I felt of balance and colapsed with no power in my left side I was taken to Hospital where I had 3 doctors examine me one being DR Max Williams now after 4 years I can get around ok, dance a little still watch my step when going for walks especialy when some one passes me. My life changed from that moment and has also like you been a battle. I wish you well and steady recovery. Kind regards Joy
Dear Phil, I read your article in the paper yesterday and felt that I had to send you a message. I am really sorry to hear about what has happened to you and what a conplete change it has had on your life. I can however relate to some of what you are going through - although it is not exactly the same. Six years ago at the age of 21 I was fit, healthy had a great job, great boyfriend, friends and a really good life and then one day I got out of my car and collasped with a brain haemmorhage. I died three times and ended up on life support and in Intensive care for 2 months. It was touch and go with the doctors not knowing if i would survive as only 5% people survive this type of bleed in the brain and I could not move or talk - i was completely paralysed but could hear and see. I had to blink to communicate for 5 months and ended up in hospital for a total of 18 months. I have had to learn to walk again, talk, use my arms/hands etc. My life has completely changed. I still have to work at my recovery everyday, doing physio and speech therapy, i use a walking frame and wheelchair and i am dependant on others for simple easy things like getting out of bed, tying my shoe laces etc! What really struck a cord with your story was your attitude. I do not know how i managed to keep going let alone keep sain and there were some really tough days that i would not want anyone to experience, however despite all that, i am still a really happy positive person - i get down days but so does everyone else. When i think about what i have gone through, it makes me realise that this happened for a reason and one day i will know what that reason was - there is always someone worse off than me. Unfortunately like you, i have lost so much, but i have also gained so much. The injury never affected my memory or intellect just my motor skills so i am still me, just with some differences. I believe i am on a journey and that this will make me a better person. I hope like you, i can inspire people. You have a beautiful soul and a great attitude - my mum always said to me "are you a swimmer or a sinker"? I guess were both swimmers! Good luck with your recovery and keep up the good work! Take care Jenny. P.S Thank you for your interview, it was inspirational x
Hi Phil Just read your article in the Weekend Bulletin. Your symptoms are almost identical to ones I experienced before being diagnosed & treated for Myasthenia Gravis. Have a look at their website (http://www.mgaq.org.au/) or feel free to email me at: jacknielsen@live.com.au if you like.
3 comments:
Hi Phil,I have just read your artical in the paper this morning and can relate to you in some ways, I used to dance 2 or 3 nights and go to dance lessons and was very fit looking forward to the rest of my life,I had my own fashion store in burleigh Heads when all of a sudden I felt of balance and colapsed with no power in my left side I was taken to Hospital where I had 3 doctors examine me one being DR Max Williams now after 4 years I can get around ok, dance a little still watch my step when going for walks especialy when some one passes me. My life changed from that moment and has also like you been a battle. I wish you well and steady recovery.
Kind regards
Joy
Dear Phil,
I read your article in the paper yesterday and felt that I had to send you a message. I am really sorry to hear about what has happened to you and what a conplete change it has had on your life. I can however relate to some of what you are going through - although it is not exactly the same. Six years ago at the age of 21 I was fit, healthy had a great job, great boyfriend, friends and a really good life and then one day I got out of my car and collasped with a brain haemmorhage. I died three times and ended up on life support and in Intensive care for 2 months. It was touch and go with the doctors not knowing if i would survive as only 5% people survive this type of bleed in the brain and I could not move or talk - i was completely paralysed but could hear and see. I had to blink to communicate for 5 months and ended up in hospital for a total of 18 months. I have had to learn to walk again, talk, use my arms/hands etc. My life has completely changed. I still have to work at my recovery everyday, doing physio and speech therapy, i use a walking frame and wheelchair and i am dependant on others for simple easy things like getting out of bed, tying my shoe laces etc! What really struck a cord with your story was your attitude. I do not know how i managed to keep going let alone keep sain and there were some really tough days that i would not want anyone to experience, however despite all that, i am still a really happy positive person - i get down days but so does everyone else. When i think about what i have gone through, it makes me realise that this happened for a reason and one day i will know what that reason was - there is always someone worse off than me. Unfortunately like you, i have lost so much, but i have also gained so much. The injury never affected my memory or intellect just my motor skills so i am still me, just with some differences. I believe i am on a journey and that this will make me a better person. I hope like you, i can inspire people. You have a beautiful soul and a great attitude - my mum always said to me "are you a swimmer or a sinker"? I guess were both swimmers! Good luck with your recovery and keep up the good work! Take care Jenny. P.S Thank you for your interview, it was inspirational x
Hi Phil
Just read your article in the Weekend Bulletin. Your symptoms are almost identical to ones I experienced before being diagnosed & treated for Myasthenia Gravis. Have a look at their website (http://www.mgaq.org.au/) or feel free to email me at: jacknielsen@live.com.au if you like.
Wishing you well.
Cheers
Jack
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